NHS Hospital shows off new idea for improving patient care We all know the NHS is underfunded
Now an NHS hospital is asking Patients to make up shortfall by using Crowd Funding. The Royal National Orthopeadic Hospital (RNOH) at Stanmore has started the ball rolling – will others follow?
Years ago, I was a patient there for six months, housed in a ward in a Nissen hut; RNOH has finally obtained funding to replace these war time buildings. However, realising patients’ expectations today are higher than basic NHS requirements, the hospital held a series of workshops to ask patients what they wanted. Helpful ideas came out of this, and it became obvious that basic NHS funding wasn’t going to be enough.
Rather than tell Patients the NHS couldn’t fund their ideas, the hospital turned to Crowd Funding, claiming to be the first in the world to go down this route. Here is a hospital brave enough to LISTEN – and tell us to put our money where our mouth is!
UK’s first ever NHS Charity crowdfunding platform launchs
The Royal National Orthopaedic Hospital Charity in Stanmore, Middlesex, has created the first bespoke NHS charity crowdfunding website to generate income during a time of financial challenge for the NHS.
The specially designed online platform allows patients, friends and families to support and fund ideas to directly improve patient care by directing donations to specific projects. The Make It Possible crowdfunding platform gives patients a voice in improving their own care and offers staff the chance for their innovative ideas to become a reality.
To ensure that the projects are viable and clinically appropriate, a panel of advisors have been appointed.
The launch project is aiming to raise £100,000 out of the total £400,000 required to help expand and refurbish the Spinal Cord Injury Centre (SCIC), the country’s leading centre for patients with a spinal cord injury. Every eight hours in the UK, someone is paralysed by a spinal cord injury, which often happens in a split second with no warning. Marcus Perrineau-Daley, aged 26, is fronting the launch campaign. He was paralysed from the chest down following a road traffic accident and spent months at his local hospital waiting to be transferred to the RNOH to receive specialist rehabilitation.
Marcus said: “My time at Stanmore was a cornerstone of my recovery. It taught me how to survive with a new life, changing clothes, lying down, being aware of your injury and self-care. I’m less than a year from my injury and I’ve already got a new role teaching kids to box and I have a renewed vision of the things that I want to achieve with my life.”
Angela Gall, Consultant in Rehabilitation Medicine at the SCIC said, “The expansion of the SCIC will enable us to extend the excellent quality of care that Stanmore offers to so many more patients, and help more people start rebuilding their lives than is currently possible. I fully support the RNOH Charity’s crowdfunding campaign, and encourage everyone to support it.”
Others would shrug their shoulders and say the NHS hasn’t the funds. But those who will benefit must surely be glad that Patients are allowed to fund this expansion.
Which will be the first cancer hospital to copy the RNOH? I don’t want others to get cancer, but I am tired of constantly being targeted for funds to help find a cure. Perhaps our hospitals should take note and look to Crowd Funding, and survivors who need help after treatment finishes would probably be first to start ball rolling. I am already paying privately to try and get help for long term side effects, but with little or no help from Oncologists am finding that I have sometimes forked out for consultations that lead to a dead end.
I am still smarting from a dressing down by a ‘caring’ cancer nurse specialists (CNS); when asking if I could be pointed in the right direction to see if there is anything else I can do about dealing with long term side effects from cancer drugs, she tried to brush me off, telling me there was nothing. I mentioned that I had been on ASCO (American Society of Clinical Oncology), MD Anderson, Dana-Farber and other reputable websites who mention programmes, treatment and things we can do to make life easier. Dismissing these with “the NHS doesn’t do that”, she tried to tell me that I would just have to put up with it.
Thinking back to the CNS attitude, it probably came about because she knows 25% of us end up with problems, but the NHS doesn’t have the money to deal with them. No-one thought of potential side effects when cancer drugs were first developed. But they happen, and many of us are already spending our own money to deal with these – so why not ask survivors to ‘Crowd Fund’?
So which cancer hospital will follow Stanore’s lead?