- Keep a diary/list on the fridge/notifications etc to remind yourself to chase up your appointments. No-one else will. (Warning – I still have skin problems – I finally saw a Dermatologist yesterday and realised this had taken a year to arrange – not good enough)
- When ‘they’ say “be kind to yourself”, remember Massage is part of European cancer treatment and proven to be good for you
- Make a genuine effort to exercise – authority after authority produces boring statistics proving it is good for you, especially to counter fatigue.
- Weight – take time to learn food calorie values, and think what are low-calorie treats for when you are at the end of your tether.
- Don’t be afraid to remind doctors of your needs. GPs are incredibly busy; once a patient has finished with hospital treatment they don’t realise we are going to need a lot of care from now on.
- Don’t be afraid to take a short nap every afternoon.
- Contact your doctor or specialist nurse if you have any concerns between appointments. Also contact them if you notice any new symptoms; don’t wait until your next visit.
- Face up to reality – NHS cuts are going to affect your after-care, so it’s up to you to chase this up.